We are so happy to be home, and this time is looks like staying here may be indefinite. At the airport yesterday, we saw this banner right next to our boarding gate. How perfect. Jonathan convinced me to stand by it for a “quick” picture. I always feel goofy doing that – you know how people have to wait to the side, etc. – but I told myself I’ve earned this, who cares. 🙂
As you know, I had clear scans of my entire body on Monday. My radiation oncologist (who’s been my 100% advocate through all of this) was very encouraging, and my stem cell doctor said I could return to Vanderbilt for my continued care. I never dreamed I could possibly let go that quickly. Thankfully, he’s very confident in his colleague that works at VUMC and knows he is very capable to watch me from here. What a lightening of our spirit that we never expected.
My eye surgeon also recommended I have my eye surgery at VUMC, so that they can regularly follow me. As well, as my dermatologist says VUMC has a great academic dermatology group see for my follow-ups. One-by-one, each visit felt like the invisible oppression was lifting.
So now we are home. I’m told to stop all of the self-exams and wondering and just “trust the process” now. Both MDA and VUMC have timetables and tests that we will follow. From what I interpret, making it to 6 months with undetectable lymphoma is very encouraging considering the very aggressive nature of my disease. I feel so so blessed to have had the aggressive treatment that I had. It really could have gone down a completely different path. I’m not saying I’ve been deemed cured, but it feels like it could be possible down the road.
So, now we continue trusting God, following the MD’s guidelines – I have to treat some Graft Versus Host Disease for my skin and liver, my immune system is still being suppressed so there are many rules for avoiding infection, and my eye will still need the minor surgery. All of those things are doable and I’ll take it a day-at-a-time.
Thank you for your prayers! In general, please pray for cancer research and its cure – it’s a horrid disease. As you walk through MDA you see all ages, races, socioeconomic classes, and countries represented, etc. Most have been completely blind-sided with their diagnosis. Some are positive and inspirational, and others appear hopeless and faithless.
Please continue to pray for our family as well. We will continue to put our trust in Jesus.
April and Jonathan…I am just reading this and I am full of so many emotions. Tears of sadness and tears of joy stream down my face right now. April you have always been one of the strongest women I know. Your strength, faith and beauty shine from within. Jonathan you are the husband that all men should hope to become. I sat here today remembering all the times you all were there for me and even though we don’t see each other or talk daily you and your family are in my thoughts and prayers!! I know that you will come out of this trial stronger than ever!! Love you all.
We are always praying for you and your family! So happy things are going so well:))
God is good:)
So happy for you! I know it has been a long road and I am so proud of you for being so aggressive and fighting this! You are truly an inspiration to others and have demonstrated how your faith can pull you through any obstacle. I am thinking of you often and will continue to pray for total healing. Enjoy your family and I hope to get to see you soon!
So pleased you are at home with your family. Prayers have been answered.
Love from the Miller Family
Glad that you’re home. Happy with your good news. You are in our thoughts and prayers. Love from your northern cousin, David
You deserve to stand next to that sign! Such a great facility. Congrats on your successful trip to Houston. I can only imagine the feelings your are having! Enjoy your family.
Lots of love from Colorado.
Val
Our prayers have been answered 🙏🏻 Praising God for this amazing report!!!! So thankful to hear such awesome news! ❤️ Angie
The song “It Is Well” says it all! May our God receive the Glory for what he has done! We love you SO much! Love, Mom
Home sweet home. 🙂 I’m so glad you have been getting such good news this past week! Hugs to everyone–Deborah